Just Frances

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All entries tagged with “itp”

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    Dating disclosures - Jan 2nd, 2017
    Since (a few failed attempts at) re-entering the dating world post-widowhood, I have learned that there are many struggles to dating in the modern era. From the drama of online dating to the drama of just dating at all, I have learned a lot about how to navigate the dating world as a “young widow”. But I am realising that there are still things I have yet to figure out. (And maybe I’ll never figure them out!) [more...]

    No spleen to vent - Sep 10th, 2016
    Regular Just Frances readers will know that I have a rare bleeding disorder called idiopathic thrombocytopenia purpura (ITP). But what they may not know is that I don’t have a spleen as a result of it. Not because there was something wrong with my spleen, but rather because (sometimes) a splenectomy is seen as a viable treatment for ITP. [more...]

    An Edinburgh non-starter - Apr 24th, 2016
    With five weeks to go until the Edinburgh Half Marathon, I’ve realised that it’s time for me to be honest about my ability to participate. And, if I’m honest with myself, I don’t think it would be wise for me to attempt it… even though there’s a stubborn voice in my head telling me to risk it. [more...]

    The road to recovery - Apr 4th, 2016
    It’s been more than three weeks since I was first stricken with a nasty little virus, and I am still on the road to recovery. I expect it will be a long road, but I’m hoping it’s not too long! After all, I have too many lovely spring-time plans to be laid up half-dead for much longer! [more...]

    An Easter return - Mar 27th, 2016
    Wow! What a madcap, crazy month it’s been! But I’m back now; I have returned! And on Easter, no less. Not that my return is as wonderful and worthy of my Saviour’s return … but I’m not one to let a funny (inappropriately funny?) link go un-joked about. [more...]

    Saving the best for last! - Sep 28th, 2015
    I ran my last Loch Ness Marathon yesterday. (Maybe.) And I accomplished a PB whilst doing it—which was totally unexpected. Even better, I am nowhere near as sore as I was the day after my first (and slowest) Loch Ness back in 2011. [more...]

    Life laughs - Jan 19th, 2015
    Sometimes I feel like the world is laughing at me; like life is laughing at me. Sometimes I feel like my entire life has been one failed attempt at happiness after another—though with short bursts of joy before tragedy strikes! [more...]

    ITP Awareness Month: My rituximab experience - Sep 24th, 2014
    [Guest post] I was diagnosed with ITP in July 2006. After four years on and off prednisolone, a quick round of nausea inducing azathioprine, and a memorable Christmas with shingles in 2009, I had rituximab treatment in August 2010. Until April 2013 I entered remission. However, in April my ITP returned so I had a further round of rituximab. In this article I relate my rituximab experience to give an insight into what happened to me, what I understand it does, and what the results have been so far. [more...]

    ITP Awareness Month: A brave child - Sep 13th, 2014
    [Guest post] It all started when we got back from our family vacation last year. I was getting my then-five-year-old daughter, Destiny, to bed one night when I noticed a bunch of red dots all over her stomach and legs. I asked my partner to come look at it and she said it looked like it could be heat rash, so we decided it was nothing to worry about. A couple days went by and we saw even more little red dots. [more...]

    ITP Awareness Month: ITP positive - Sep 11th, 2014
    [Guest post] My ITP adventures started on Friday, July 28th, 2006, and my life changed dramatically from that day. Probably like many other ITP sufferers, I had never before had any serious illness. The diagnosis of ITP (idiopathic thrombocytopenic purpura) was a complete shock. For ages I could not correctly pronounce it let alone understand what it was—but looking back I had probably been suffering from it for about a year before diagnosis. [more...]

    ITP Awareness Month: A sister’s view - Sep 9th, 2014
    [Guest post] Idiopathic thrombocytopenic purpura. Try saying that three times fast. No? Okay, how about we just call it ITP for short. But what is ITP, you ask? It is a disorder that makes people bruise easily and means that when they get your average, every day, run of the mill cold, they could end up in the hospital because their immune system isn't quite up to the task of fighting off the cold on its own due to their low platelet count. [more...]

    ITP Awareness Month: An iceless challenge - Sep 1st, 2014
    Right! It’s ITP Awareness Month again so let’s start raising some awareness! I decided to tackle awareness month differently this year, because I think we need to start shouting a bit louder. After all, sometimes you have to raise your voice to raise awareness. [more...]

    Just four years - Feb 15th, 2014
    Just Frances is four years old. Wow! Can you believe that I’ve been spewing this utter nonsense for that long? And if you thought I might be nearing the end of rubbish things to talk about, you’re wrong. (No apologies. If you don’t like it, you can just stop reading!) [more...]

    ITP Awareness Month: Living and coping - Sep 1st, 2013
    It’s September and that means that it’s ITP Awareness Month. So I thought I’d share a bit more about my ITP journey with you to give the disease a bit of a human face. Last year I shared the story of my diagnosis and the fear it brought me in the early days. [more...]

    When I close my eyes - Aug 12th, 2013
    Sometimes I like to close my eyes and imagine the life I want. It’s by no means an extravagant life—it doesn’t even include winning the lottery—but it’s the life I dream of having. [more...]

    I’m high - Jun 3rd, 2013
    I had lunch with a friend today and the topic of my platelet counts came up. Initially as a genuine curiosity to know how they were, but then as a bit of gentle scolding at the fact misconception that I only ever share the bad platelet news—not the good. [more...]

    Running nightmares - May 26th, 2013
    As most people do, I have bad dreams from time-to-time—the bothersome little dreams that haunt you all day long: Showing up to a test unprepared; arriving at a party without your shoes or shirt; running through the forest from some unknown monster. [more...]

    Rare Disease Day 2013 - Feb 28th, 2013
    Today is International Rare Disease Day. It's a day when people around the world band together to make a lot of racket about something that impacts the lives of millions of people–despite the fact that, individually, some rare diseases impact only one. [more...]

    A life I value - Feb 24th, 2013
    Yesterday’s post seems to have created some interesting—and unexpected—feedback, so I thought I’d take the time to talk about it some more. [more...]

    My social worth - Feb 23rd, 2013
    Since becoming a widow, I’ve given a lot of thought about the value of my life; the purpose and the meaning of it. I’ve wondered why I’m here in this world that seems so filled with pain. I’ve wondered if I want to continue living in this world into old age. [more...]

    A stranger saved my life - Jan 17th, 2013
    One day, a stranger saved my life. Actually, it was probably more than one stranger and it probably happened over a series of days. And the actual day my life was saved was a different day all together. [more...]

    ITP Awareness Month: My story - Sep 17th, 2012
    September is ITP Awareness Month, so I thought I’d share my ITP story with you. [more...]

    Quiet-ness - May 26th, 2012
    I’ve been quiet again. (Still?) So I feel that I should pop in and say hello, since so often I’m quiet when life is hard and I’m feeling down. But that’s not the case right now. Well, mostly not the case. [more...]

    An ode to my platelets - Mar 14th, 2012
    Once again, I’ve found myself with a lower-than-ideal platelet count. Well, it was very low last week (13!) and I had them re-tested today. Hopefully when the results come in later this week, they’ll be better. In the mean time, I have been referred to a haematologist again. Not that they can fix me, as this silly little condition seems to be sticking around. [more...]

    Freedom of the City - Mar 10th, 2012
    My day started out pretty lazy and I didn’t have plans of leaving the flat until early afternoon. But then I learned that there was a military pipe and drum band making their way through town. Which meant that I needed to get dressed and get a move on my day. And I’m so glad that I did! [more...]

    Paranoia - Nov 22nd, 2011
    Last week I finally got around to seeing my new doctor and this week I’m regretting it just that little bit. You see, on the outside I look like a perfectly healthy, 37-year-old woman. (Though some people think I look younger than that, which is cool.) [more...]

    Why run? - Oct 1st, 2011
    I’m running my first—and last—ever marathon in the morning. I’m pretty excited about it, but at the same time I’m rather dreading it. You see, I don’t actually enjoying running exceedingly long distances. 10Ks and 12Ks are fun. [more...]

    Lost voice messages - Jun 14th, 2011
    Just before bedtime on Sunday I started to feel a bit of a tickle in my throat and by the time I woke up Monday morning, my voice was gone. (I think the tickle stole it!) I was certain it would get better as the day went on so I headed into the office. [more...]

    For the last time - May 2nd, 2011
    Well folks, the Bloomsday 12K results are in. But I’m going to get all melancholy for a bit before I get to that part. [more...]

    100 random things - Feb 17th, 2011
    My friend posted a list of 100 random things her daughter wrote about herself out of boredom and I thought I’d give it a shot and create my own list. So, if you’re not already bored, this should help… [more...]

    The life of tiny platelets - Jan 15th, 2011
    A low platelet count means I’m on rest orders from the doctor. My foster daughter is spending the night at a friend’s house. I’m too cheap to pay for cable so I’m watching The Godfather for the gazillionth time. Which means I’m a bit bored silly at the moment. [more...]

    Ten - Jan 14th, 2011
    Following up on yesterday’s spotty confession, I had a blood test today and had a platelet count of 10.* This means that I am officially on rest orders. [more...]

    Seeing spots - Jan 13th, 2011
    Somewhere in the midst of this cold I was hit with chills and pains. My whole body ached. My head was pounding. And I had an 11-year-old foster daughter to take care of so I couldn’t do what I’d normally do, which is to go to bed and stay there. [more...]