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All entries tagged with “tolvaptan”

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    Tolvaptan tales: A one-year review - May 14th, 2018
    This past weekend marked one year since I started taking tolvaptan. In that year, I have learned quite a bit about how to manage the medication as I go about my day-to-day life. This post is intended to share my experiences for my own personal reflections, but I hope that it will serve as an information starting point for others. However, please remember that your experiences may vary. [more...]

    My PKD liver (or PKD-associated PLD) - Mar 12th, 2018
    Regular readers will know that I have polycystic kidney disease (PKD). What they might not know is that I also have PKD-associated PLD (that’s polycystic liver disease). In fact, 75-90% of people with PKD also have PKD-associated PLD. [more...]

    Tolvaptan tales: A four-month reflection - Sep 16th, 2017
    It has been about four months since I started taking tolvaptan, which is a great opportunity for an update. As with the post I shared about my experiences in the first month, the information shared here is meant as an information starting point. It is not medical advice; it is simply one woman’s experiences. Your own experiences may vary. [more...]

    Tolvaptan tales: The beginning - Jun 10th, 2017
    Last month I shared that I was getting ready to start a new medication called tolvaptan. The drug is meant to slow the progression of my kidney disease (polycystic kidney disease, or PKD) which is the best I can hope for as there is no cure for it (yet). I struggled to find any good, in-depth reviews before starting the drug, so I decided to share my experiences here. [more...]

    Talkin’ tolvaptan - May 11th, 2017
    Tomorrow morning, I will start taking a new drug called tolvaptan, which is meant to slow the progression of my kidney disease. When I was first recommended for the drug, I went in search of some user experiences online. But my search didn’t bring up any blog posts or laypersons’ stories and testimonials. So I’ve decided I would get my experiences out there for the next person Googling about tolvaptan and PKD! I will try to share a couple (maybe a few) progress updates, too. All posts related to my experience with tolvaptan will be tagged as such, in addition to my general PKD tag. [more...]